Sanfilippo Children's Foundation
Sanfilippo Children's Foundation
Mar 26, 2020
sanfilippo.org.au
Abby's Alliance - Battling Sanfilippo Syndrome Cure Sanfilippo Foundation National MPS Society Team Sanfilippo TSF INC #memories | Taci Lynn
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Abby's Alliance - Battling Sanfilippo Syndrome Cure Sanfilippo Foundation National MPS Society Team Sanfilippo TSF INC #memories | Taci Lynn
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What Causes Sanfilippo Syndrome | Cure Sanfilippo Foundation
What Causes Sanfilippo Syndrome | Cure Sanfilippo Foundation
Aug 8, 2023
curesanfilippofoundation.org
National MPS Society Cure Sanfilippo Foundation Team Sanfilippo TSF INC #witharmswideopen #signlanguage Creed | Taci Lynn
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National MPS Society Cure Sanfilippo Foundation Team Sanfilippo TSF INC #witharmswideopen #signlanguage Creed | Taci Lynn
226.7K views7 months ago
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A peek inside life with Sanfilippo. @Abby's Alliance - Battling Sanfilippo Syndrome | Cure Sanfilippo Foundation
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A peek inside life with Sanfilippo. @Abby's Alliance - Battling Sanfilippo Syndrome | Cure Sanfilippo Foundation
46.7K viewsSep 8, 2023
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$195,942 raised for Cure Sanfilippo Foundation at the 9th Annual My Pal Spencer fundraiser! | Cure Sanfilippo Foundation
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$195,942 raised for Cure Sanfilippo Foundation at the 9th Annual My Pal Spencer fundraiser! | Cure Sanfilippo Foundation
333 views9 months ago
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Cure Sanfilippo Foundation #learnmore #fblifestyle #ourlife | Taci Lynn
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Cure Sanfilippo Foundation #learnmore #fblifestyle #ourlife | Taci Lynn
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Her story is extraordinary... | Cure Sanfilippo Foundation
137.1K viewsSep 27, 2016
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What is the Prognosis of Sanfilippo Syndrome? | Cure Sanfilippo Foundation
May 21, 2020
curesanfilippofoundation.org
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Sanfilippo doesn’t stop family from having a wonderful ski trip! | Cure Sanfilippo Foundation
801 viewsMar 28, 2025
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What a family says about hippotherapy Sanfilippo Syndrome | Cure Sanfilippo Foundation
969 views11 months ago
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Get your tickets now to the Oct. 28 Sanfilippo Halloween Gala. Visit www.SanfilippoFoundation.org Tickets are going fast. | Sanfilippo Foundation
536 viewsSep 4, 2023
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This is Trenton's story. Our journey with Sanfilippo syndrome | Cure Sanfilippo Foundation
35K viewsSep 1, 2023
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What is Sanfilippo Syndrome? Meet a wonderful family and beautiful girl How does Cure Sanfilippo help? | Cure Sanfilippo Foundation
138.6K viewsMay 5, 2020
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Happy birthday, Asher!! - with Adventures with Ace - Life with Sanfilippo | Cure Sanfilippo Foundation
21.6K viewsMay 22, 2024
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Life with Sanfilippo Syndrome presents unique challenges to every aspect of life. Families of children with Sanfilippo Syndrome are generously allowing us to share with you how they tackle different aspects of their life to ensure their child has the best care and quality of life. And it couldn’t be more poignant than to launch this series on #RareDiseaseDay. Meet Julie, mom of 21-year-old Alex who has Sanfilippo Syndrome Type B. She is sharing their nighttime routine with Alex, some of the chal
5.9K viewsFeb 28, 2025
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If you are concerned about your child possibly having Sanfilippo Syndrome you can reach out to the Cure Sanfilippo Foundation for guidance and testing. You can also request testing through a geneticist. The most accurate diagnostic tool is a blood test. Specifically, a metabolic panel or lysosomal storage panel looking into the family of MPS diseases. Testing can also be done by urine screening and skin cultures. Also, we know that there are other options when in comes to having children like ad
119.5K viewsDec 22, 2023
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Sanfilippo syndrome is so much more than just facial features. We put this together because we often get messages from people asking if their child might have Sanfilippo based on pictures. You cannot diagnose this disease based on pictures alone. Here are other symptoms provided by Cure Sanfilippo Foundation : Early Symptoms of Sanfilippo:-Transient Tachypnea Of Newborn*(fast breathing after birth)-Coarse Facial Features*(frontal bossing/prominent forehead, full lips and nose)-Prominent, thick e
141.9K viewsMay 23, 2025
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Today we’re going to a funeral for a little girl who also had Sanfilippo Syndrome and was only six months older than Sadie. Please consider giving to Cure Sanfilippo Foundation for #givingtuesday so one day soon we’ll have a treatment and we can stop burying our babies. #givingtuesday2023 #CureSanfilippo #sanfilipposyndrome | Saving Sadie Rae: Cure Sanfilippo
201.8K viewsNov 28, 2023
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Cure Sanfilippo Foundation on Reels
575 views6 months ago
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Cure Sanfilippo Foundation on Reels
92K viewsJun 23, 2023
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Cure Sanfilippo Foundation on Reels
755 viewsAug 26, 2024
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Saving Liv – Cure Sanfilippo Foundation
Dec 2, 2022
curesanfilippofoundation.org
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Remembering Danny. Always. | Cure Sanfilippo Foundation
45.3K viewsNov 16, 2024
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Marisa and Mike's son Connor was diagnosed with Autism. But there was something more... | Cure Sanfilippo Foundation
98.6K viewsOct 15, 2020
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Love her. | Cure Sanfilippo Foundation
586K viewsApr 25, 2023
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Celebrating Molly today. Happy birthday, solskin! | Cure Sanfilippo Foundation
38.1K viewsAug 15, 2023
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What are you doing for the Holidays? | Sanfilippo Foundation
2.5K views6 months ago
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It means more than you can imagine to every family. Thank you! | Cure Sanfilippo Foundation
1.6K views6 months ago
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Today is all about you! w/Saving Liv | Cure Sanfilippo Foundation
21.1K viewsDec 3, 2023
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